MyotonicUK is dedicated to improving the quality of life of people living with myotonic dystrophy (DM), the most common form of muscular dystrophy, through funding for basic and translational research, and patient advocacy.

Myotonic dystrophy is the most common form of muscular dystrophy, affecting at least 1:8000 people worldwide. Considered the most variable disease in medicine, myotonic dystrophy (DM) is an inherited disorder that can appear at any age and manifests differently in each individual. DM can cause muscle weakness, atrophy and myotonia (prolonged muscle cramping), in addition to problems in the heart, brain and GI tract, and the endocrine and respiratory systems. Click here to learn more.

MyotonicUK was founded in 2015 in London by a group of individuals who care deeply about supporting global efforts to improve the quality of life and circumstances of those living with myotonic dystrophy through efforts to accelerate the discovery of treatments.

A list of current MyotonicUK trustees is available here.

MyotonicUK Funds:

  • Basic and translational research focused on finding treatments and a cure for myotonic dystrophy
  • Advocacy efforts to improve access to care and enhance the regulatory pathway

MyotonicUK accepts unsolicited grant proposals; keep in mind that funding is limited. See the MyotonicUK Application Guidelines for more information.

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